tag:blogger.com,1999:blog-9018829359153875134.post6108096895534529915..comments2023-05-16T08:39:23.776-04:00Comments on Chronic Fatigue Syndrome and Fibromyalgia: A Day in the Life: An Invisible Illnesscfsgirlhttp://www.blogger.com/profile/00089349356420182971noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-9018829359153875134.post-74015675710039762232010-12-20T20:10:39.355-05:002010-12-20T20:10:39.355-05:00@Susan
Susan, thanks for making my day! There is...@<a href="#c5295114450575471817" rel="nofollow">Susan</a><br /><br />Susan, thanks for making my day! There is nothing I love more than getting feedback like yours. I love when my blog generates dialogue and helps people with our condition connect. I can't wait to read your response.cfsgirlhttps://www.blogger.com/profile/00089349356420182971noreply@blogger.comtag:blogger.com,1999:blog-9018829359153875134.post-52951144505754718172010-12-20T17:46:15.716-05:002010-12-20T17:46:15.716-05:00Wow, Marah,
What an excellent post. I very much ...Wow, Marah, <br /><br />What an excellent post. I very much loved to read it. I do know people with Asperger's Syndrome (someone very, very close to me, actually) and I would love to read the book you just read and will be ordering it from the library. <br /><br />I know what it's like to not want to ask for help. For some reason folks with Fibro and CFS like us have trouble asking for help when we need it. We want to be able to do it all on our own. I know for myself, I sometimes think if I asked for all the help I actually need, I'd have a list as long as my body and I'd have nothing left to do. ;-) Funny maybe, but true.<br /><br />I am using my blog the same way as you are. A "coming out" of sorts. People know I have some health issues, but they don't really know much about them. It can be frustrating trying to explain yourself over and over again. Can't it? And you're right, when you look fine on the outside, people assume you're doing great on the inside too. I very much liked what you said about when you lost weight due to your stomach issues. Folks assumed you dieted and were trying to drop weight when in fact, you were ill. I'm with you. I'd rather have more weight on me then be thin due to illness.<br /><br />It's tough to listen to people tossing advice my way all the time too. I know they mean well. They want me to be okay. But they just don't get it and sometimes, no matter how much I explain, they still just don't get it. It's almost like hitting a wall and hoping to make a little dent.<br /><br />I love the questions you wrote at the end of your post and I hope you don't mind, but I'm going to copy them and write a post answering those questions. I think they're excellent and thought provoking. I'll also put in the post a link back to yours. I believe I'll have it up tomorrow sometime. <br /><br />Oh, and yes, you may put a link back to my my blog. I'd be happy to have you do that. Thank you so much.Susanhttps://www.blogger.com/profile/16581128902081203020noreply@blogger.com