tag:blogger.com,1999:blog-9018829359153875134.post3587922878581777871..comments2023-05-16T08:39:23.776-04:00Comments on Chronic Fatigue Syndrome and Fibromyalgia: A Day in the Life: Ch-Ch-Ch-Changescfsgirlhttp://www.blogger.com/profile/00089349356420182971noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-9018829359153875134.post-26427795316739379782011-01-14T10:47:51.076-05:002011-01-14T10:47:51.076-05:00Thank you both soooo much for your comments. It f...Thank you both soooo much for your comments. It feels really good just to be understood.cfsgirlhttps://www.blogger.com/profile/00089349356420182971noreply@blogger.comtag:blogger.com,1999:blog-9018829359153875134.post-11995360992904216242011-01-14T08:48:13.413-05:002011-01-14T08:48:13.413-05:00OH Marah, I hear you, honey. I am not in college r...OH Marah, I hear you, honey. I am not in college right now, and I do live with my husband and son in our own home, but my Mom is here again taking care of me and is thinking about selling or renting her house to be able to move in and be here for me daily while hubby is off at work. I did have some years when that wasn't necessary, and I hope you reach that for yourself too. Just take it easy on yourself and love yourself. You deserve lots and lots and lots of love. I'm sending you some just so you have extra. <br /><br />I know the feeling. I've been feeling like a victim myself, these past few weeks and I keep trying to fight it and be the brave warrior. The woman who can handle it and stick it out. But sometimes, well, sometimes I'm just a small little scared creature, or worn out and beat up little thing, tired of the fight and tired of hoping and wishing that it will be different for me some day. I understand that feeling and those thoughts.<br /><br />I guess this is the challenge of having to accept our limitations. To accept it when changes come our way. And we may not readily accept it face on... it might take a little while. A few days. A few weeks. A couple of months. <br /><br />Thank goodness for this little community we have here for support and understanding. It's okay to moan about it, cry about it, rage about it if we need to. We all have been there, Sweetie. I know how horribly bad you must want a break from it all. I was just telling my husband the day before yesterday that I just can't keep this up. I just can't keep going. It's ridiculous. I just want a day, just one day a week where I actually feel good. Just one. I completely understand. I wish I could do something for you<br /><br />Hang on, Marah. Just hang on. Thank goodness you have a loving and understanding family. Imagine how difficult this would be if you didn't have them. You are blessed (and I know you already know this) with them and they are blessed with you. Any opportunity you have and they have to love one another and be there for one another is a day worth living. <br /><br />Hugs and love and prayers of healing to you,<br />SusanSusanhttps://www.blogger.com/profile/16581128902081203020noreply@blogger.comtag:blogger.com,1999:blog-9018829359153875134.post-67495071022064445332011-01-14T05:43:16.834-05:002011-01-14T05:43:16.834-05:00It's just freakishly annoying, and amazing how...It's just freakishly annoying, and amazing how much this hits home. I HATE taking showers. I know I have to, but boy do they wear me out! That's one of the things I hated the most, something that seems so basic, is a huge task. It's so nice to hear that I'm not alone. I keep telling myself I can't be sick, I have to go through college, I have to graduate on time, I have to do this or that. But thank you for being brave enough to listen to your body. For being brave enough to rest and really take care of yourself. Maybe I will learn something from you. I need to let myself be ok with not being perfect. Let myself be ok with the change. I believe there is this weird understanding that connects people who have to go through this, because no matter how much I say you don't understand, you do. Because you're living it to. And it is amazing to not be alone. I hope you have a relaxing break and physical therapy works wonders for you! :)Anonymousnoreply@blogger.com